ISBN 90-807521-1-8 870-medisch algemeen 770-psychologie algemeen Authors: Arni Hubbeling,Psychologist, Researcher and Integrative Psychotherapist in Amsterdam Johan Mulder, Developmental Psychologist at Ipse, Nootdorp, centre of expertise in the care for people with a mental handicap Illustrations Marte Streefkerk, 1975 - 1995 Translation: Translation office T.A. Drost-Plegt, Opaal 4, 1703 CB Heerhugowaard Edition: STSN Stichting Tubereuze Sclerosis Nederland Printer: Grafifors BV, Postbus 438, 3800 AK Amersfoort About the authors Johan Mulder (1951) is a developmental psychologist and has worked in the care for people with a mental handicap since 1978. He works for the Stichting Ipse (Ipse Foundation) in Nootdorp, the Netherlands and has experience with children and adults. During the past few years, he has specialised in psychiatric and behavioural problems in people with a mental handicap. Also he has studied the neuropsychological aspects of non-congenital brain damage. Arni Hubbeling (1944) is a psychologist and psychotherapist. She has done research into intercaste marriages in India and into the self-image of girls and women in the Netherlands. For 15 years she worked as educationalist in the national educational counselling in various types of Secondary and Pre-University Education. Since 1987 she has been running a private practice for Integrative Psychotherapy. In the care for people with a mental handicap she was involved in innovations in the areas of living situation, day care and Special Education for Children with Serious Leaming Disabilities. Her inspiration and experience with TSC are due in the first place to her daughter Marte, who had TSC. She died in 1995 at 20 years of age. Johan Mulder and Arni Hubbeling have been members of the study group Behaviour of the Dutch Tuberous Sclerosis Assocation since 1991. They have focused on studying the socio-emotional consequences of TSC and counsel clients with TSC, parents and care givers.